Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey

By sjmartinez • December 8, 2023

Weitzman ER, Minegishi M, Cox R, Wisk LE. Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey. JMIR Pediatr Parent. 2023 Dec 6;6:e46555. doi: 10.2196/46555. PMID: 38059571.

Tags: adolescent, Adolescents, chronic illness, confidential, confidentiality, General Internal Medicine, outcome measure, outcome measures, patient data, patient reported, patient-reported outcomes, personal, personally generated data, privacy, PROM, Publications, Quality of Life, research involvement, rheumatic, rheumatic disease, Rheumatoid, Sharing, Social media, Youth

Breaking the Chain of Survival: What Progetto Vita Tells Us, and What It Doesn’t

Talishinsky A, Ajijola OA, Salhi RA. Breaking the Chain of Survival: What Progetto Vita Tells Us, and What It Doesn't. J Am Heart Assoc. 2025[...]

Longitudinal Trajectories of Multimorbidity and Psychosocial Resilience Resources in Midlife and Older Adults: Findings From the Health and Retirement Study

White Whilby K, Robinson-Ector K, Bell BA, Ma T, Hasan S, Quiñones AR, Wei MY. Longitudinal Trajectories of Multimorbidity and Psychosocial Resilience Resources in Midlife[...]

Applying Race and Ethnicity in Health Disparities Research

Norris KC, Hudson MF, Wilson MR, Wojcik GL, Ofili EO, Hedges JR. Applying Race and Ethnicity in Health Disparities Research. Int J Environ Res Public[...]