Exploring the role of digital tools in rare disease management: An interview-based study

By sjmartinez • May 14, 2024

Chang A, Huang SD, Benjamin DJ, Schmidt JL, Palmer CGS, Garrison NA. Exploring the role of digital tools in rare disease management: An interview-based study. J Genet Couns. 2024 May 13. doi: 10.1002/jgc4.1908. Epub ahead of print. PMID: 38741243.

Tags: caregivers, complex disease, digital tools, disability, General Internal Medicine, parents, Publications, rare disease

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