Items Tagged ‘Chiari malformation’

UCLA doctor diagnoses teen's complex disorder, restoring her vision, ability to enjoy life

July 5, 2018

UCLA doctor diagnoses teen’s complex disorder, restoring her vision, ability to enjoy life

By Elaine Schmidt elaineschmidt

Rhianna Wilson spent her senior year of high school in and out of four San Diego hospitals, seeking relief for her vision loss, pain and debilitating headaches. At age 18, she was diagnosed with Ehler-Danlos Syndrome (EDS), a rare genetic disorder marked by overly stretchy connective tissue. In Wilson’s case, the disorder revealed itself in […]

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Tags: adolescent medicine, blindness, brain, Chiari malformation, Ehler-Danlos Dyndrome, joint pain, neurosurgery, pediatric neurosurgery, pediatrics, teenager, vision loss