“We’re parents who came together to support each other and to look at how the next generation can benefit from the hospital,” says Monique Rosenthal, a member of the Parent Association Council at UCLA Health. “My daughter is a patient under the care of Neurology and Immunology for a rare autoimmune disorder. We come once a month to the Infusion Center. One thing I did change was to make it better for the kids to sleep. The EEG monitor has a big, bright light, and it causes a lot of anxiety. I brought it up, and someone can safely turn it off while someone else monitors it on the other side. Now, you can sleep better and it’s more peaceful. It’s something very small, but it makes it better for the kids. Every parent can bring something to the table. The council hopes to relieve some of the stress on parents and help make the environment better."
Tags: featured, infusion center, Neurology, Parent Association Counci, patient story, Pediatric Allergy & Immunology, pediatric neurology, Pediatrics, rare autoimmune disorder, UCLA Mattel Children's Hospital